Helpful Websites

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USA based resources for conditions resulting from ZC4H2 Associated Rare Disorders:

Arthrogryposis Multiplex Congenita Support a non-profit organization to provide and encourage more understanding and mutual support among anyone affected with the diagnosis of AMC.

The Pediatric Cortical Visual Impairment Society provides information on cortical visual impairment and interventions to improve functional vision.

The Epilepsy Foundation provides information on seizures, how to live with seizures, and seizure first aid.

Autism Speaks is a non-profit organization which provides information and support to individuals on the Autism spectrum.

USA based parent support resource:

P2P USA | Supporting Parents Nationwide an organization that helps pair parents with other parents to offer support and resources that are specific to each participating state.

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