If you are a family member with a loved one diagnosed with ZARD, we welcome you to our community with open arms and you are not alone. We would be honored to meet your family in person and on social media through our exclusive parent-only Facebook group. We have a dedicated group of parents who are eager to support you through this journey with an ultra-rare condition. Members are encouraged to ask questions and share personal challenges and triumphs. We have a presentation thread so you can find a fellow ZARD family in your region or country. We are also actively recruiting for a Natural History Study and would love for you to be a part of this exciting research opportunity. To learn more about it click here.

For extended family members, caregivers, and friends who are interested in supporting someone with ZARD, we would be sincerely grateful if you would become involved in our mission to spread awareness about ZC4H2 Associated Rare Disorders. We encourage you to browse the website and learn about ZARD. We also encourage you to join our community Facebook group. Please share the Foundation website with others.

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