The first ever Natural History Study on ZC4H2 will start soon and we need your help!

A Natural History Study is a type of research study that aims to understand the natural progression of a condition over time.

With this study, we will be able to better understand ZARD and its prognosis and hopefully develop better treatments for our children.  

The study is conducted by Dr David Bearden, pediatric neurologist at the University of Rochester, and his team. The whole study will be conducted remotely on video or phone calls. All families can participate, from all over the world. Translation will be available in your language.