Donate - ZC4H2 Foundation

Donations

ZARD (ZC4H2 Associated Rare Disorders) is an ultra-rare condition that affects children in profound ways, from birth and throughout their whole lives.

Hope for a better quality of life for our children starts with scientific and medical research.

You now have the opportunity to give hope to our children, by donating for scientific research on ZARD.

Your contribution is tax-deductible as described on your receipt and to the extent allowed by law. ZC4H2 Research Foundation, Inc. is a US 501(c)(3) public charity, EIN 87-4577599.

You can donate via this link, from anywhere in the world:

Other Ways to Donate

Text-To-Donate

Text “ZC4H2” to 44-321 (In USA only)

Check Donations

Make payable to ZC4H2 Research Foundation, Inc and send to:

Thomas Simcoe
22 Corporate Woods, Ste 501
Albany, NY 12211

If you need any assistance with processing your donation, please email Megan Grieves at c onnect@zc4h2foundation.org or call us at 518-512-9951 (USA).

By donating you are making a difference in the lives of families every day!

“When my son was diagnosed with ZARD, we had no idea what to do, neither did our doctors. The Foundation not only provided us a tremendous amount of information about our son’s condition, but also connected us with other parents. It has given us a lot of hope, going beyond just telling us what is already known, but orchestrating the research about ZARD. We are extremely grateful for all the people associated with the Foundation for increasing the comfort of our child’s life, but also our own lives, as parents. ” -Tomasz, Poland

“It was a few weeks before Christmas when my husband and I learned the news that our daughter’s genetic testing revealed a genetic mutation known as ZC4H2. To anyone on the outside, it feels like this crushing news is laid at your feet; but for us, it gave us a name and a place to start looking for clues. One of those answers led us to the ZC4H2 Research Foundation. We found a network of other families across the globe. That web began helping us find literature and research that gave better insight into our daughter’s medical condition. It gave us information to share with her providers and helped us find new members of her care team that treated other children like her. While the network and the literature were vital to us in moving forward for our daughter’s care, the biggest thing the Foundation gave us was a new family that fostered hope. Connecting with other families, exchanging success stories, feeling comfort during hard times from people on the other side of the world, those were the impacts that helped my family as we began to navigate what our life now looked like. Our daughter passed away in 2021, but our involvement with the Foundation hasn’t stopped. We are beyond proud to continue supporting and being active in the work they do. While our mission has changed in terms of finding answers for our daughter, their mission has not. They continue to provide hope through science.” -Jan, Virgina, U.S.A