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Past Events

The Million Dollar Bike Ride –our first public fundraising event

This is one of the most prominent and important public fundraising events for Rare Diseases worldwide. 

June 11, 2022 7:00am EST

UPenn Campus Philadelphia

1st International Scientific Meeting on ZC4H2

In September 2018, the Foundation successfully organized the 1st International Meeting on ZC4H2, a 2-day think-thank event, gathering the most relevant scientist and clinicians worldwide.

September 20 & 21, 2018

Dubai, UAE